Lance Thornbrugh

Lance Tyler Thornbrugh was born on Sept 1, 1995, in Santa Cruz, California. He was DX Jul 1996, with a PNET 3rd Pineal Region Brain Tumor which was placed in remission Aug 1997. He loves anything with wheels or buttons and he's having fun with his new walking skill. I love his hair and his smile and how he calls his dad by name and the joy he brings us.

When It All Started



When Lance was born, he had hydrocelphus and underwent surgery to implant a shunt. This was suppose to be a one/time surgery. The shunt failed.... and failed repeatedly, which involved additional surgeries until the tumor was discovered. Shortly thereafter it was determined he was born with it which caused the hydrocelphus and the continual shunt failures.

His prognosis was poor. After the brain surgery, which removed 90% of the tumor, the remaining 10% was treated with chemotherapy at first. That didn't shrink the tumor, and his prognosis remained poor. It was predicted he would not survive to his first Thanksgiving; when he did, the doctors said he would be lucky to make his first Christmas. He was very weak, fed through tubes, listless, but he was there and he made it through that first Christmas last year!

He was undergoing radiation by then, still with dire predictions from the doctors. He continued to lose weight (he was 27 pounds at the beginning of treatment; 17.5 pounds in March when the treatment stopped).

He was bald, skinny, didn't smile, but he was there! When the tumor was pronounced in remission, only the doctors were surprised. Lance was the subject of many, many prayer lists, including an internet one that literally stretched worldwide!

Because of radiation to the spine, it was predicted that Lance would not stand up by himself and would never walk. He also has a "lazy eye" and might have to wear glasses, the tumor had rested over an eye nerve. He also has a slight loss of hearing.

A little history -- Lance has had 9 operations with the shortest being 15 min. for the hickman removal on June 2, 1997 to the longest being 6 hours on Sept, 26 1996 for the tumor resection. He had chemo for 7 weeks and a MRI indicated that it wasn't working so radiation was started Jan. 2 `97 and finished Mar. 5 `97 with intermitment stops and starts because of low counts. He had a total of 6 weeks radiation.

Lance is currently being treated at the Packard's Children Hospital, located in Stanford, Palo Alto, California.

Status: June 4, 2009



"...and pray for each other so that you may be healed.
The prayer of a  righteous person is powerful and effective." James 5:16.

Lance is doing GREAT!! He's out of school as of tomorrow and then he'll be my 8th grader!!! Can't believe that they at one time didn't think he'd make it to 2 years old!!! (what do they know anyway?!) He just went surfing last weekend with RIDE A WAVE! It's a wonderful org that takes kids/adults with disabilities out for a day of surfing/kayaking/boogie boarding. They also treat everyone like kings. Lance had such fun surfing!!! We had good/bad news at his Endocrinology appt. he is no longer growing. 5 1 1/2 isn't bad. He had been on those growth hormone injections since he was three. SO, the good news is that he doesn't have to have shots anymore!!! The bad news he isn't going to get any taller!! I think he'll be fine with it in the end. Well, that's about it. I'll talk to you later. HOpe to hear about whether you move or not.

HUGS,

Char Mom to Lance dx w/ PNET 7/96, Remission since 3/5/97!!!

Don't forget to sign his guestbook at his web site, he loves getting his messages. This is Lance on a "Spike" hair-day.
[Caring Bridge] web page.

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MAY GOD BLESS THE CHILDREN !